[ 1 ] 何耀平, 叶坚骏, 陈刚, 等. 地市级医疗健康大数据一级共享平 台构建研究与实践 [J]. 中国数字医学, 2016, 11(8): 34–37. He Y P, Ye J J, Chen G, et al. The construction research and practice of the level-1 sharing platform of prefecture-level medical and health big data [J]. China Digital Medicine, 2016, 11(8): 34–37.
He Y P, Ye J J, Chen G, et al. The construction research and practice of the level-1 sharing platform of prefecture-level medical and health big data [J]. China Digital Medicine, 2016, 11(8): 34–37. Chinese. 链接1

[ 2 ] 何毅, 王曙光, 刘文浩. Infobutton在国家人口与健康科学数据共 享平台的应用研究 [J]. 中国数字医学, 2016, 11(1): 80–83. He Y, Wang S G, Liu W H. Application of infobutton in national population and health science data sharing platform [J]. China Digital Medicine, 2016, 11(1): 80–83.
He Y, Wang S G, Liu W H. Application of info button in national population and health science data sharing platform [J]. China Digital Medicine, 2016, 11(1): 80–83. Chinese. 链接1

[ 3 ] 郭鑫鑫, 王海燕. 大数据背景下基于数据众包的健康数据共享 平台商业模式构建 [J]. 管理评论, 2019, 31(7): 56–64. Guo X X, Wang H Y. Business model of health data sharing platform based on data crowdsourcing in the context of big data [J]. Management Review, 2019, 31(7): 56–64.
Guo X X, Wang H Y. Business model of health data sharing platform based on data crowdsourcing in the context of big data [J]. Management Review, 2019, 31(7): 56–64. Chinese. 链接1

[ 4 ] 俞成功, 丁静. 基于区块链的健康医疗大数据平台构建 [J]. 电 子技术与软件工程, 2020 (6): 176–179. Yu C G, Ding J. Construction of health care big data platform based on blockchain [J]. Electronic Technology and Software Engineering, 2020 (6): 176–179.
Yu C G, Ding J. Construction of health care big data platform based on blockchain [J]. Electronic Technology and Software Engineering, 2020 (6): 176–179. Chinese. 链接1

[ 5 ] 戴阿咪. 医学大数据共享关键问题研究 [D]. 北京：北京协和医 学院 (硕士学位论文), 2018. Dai A M. Research on key issues of medical big data sharing [D]. Peking Union Medical College (Master’s thesis), 2018.
Dai A M. Research on key issues of medical big data sharing [D]. Peking Union Medical College (Master’s thesis), 2018. Chinese. 链接1

[ 6 ] 王辉, 王换换, 吴响. 区域健康医疗数据共享及隐私保护策略研 究 [J]. 科技创新与应用, 2017 (31): 181–182. Wang H, Wang H H, Wu X. Research on regional health and medical data sharing and privacy protection strategies [J]. Science and Technology Innovation and Application, 2017 (31) : 181–182.
Wang H, Wang H H, Wu X. Research on regional health and medical data sharing and privacy protection strategies [J]. Science and Technology Innovation and Application, 2017 (31): 181–182. Chinese. 链接1

[ 7 ] 赵飞, 武琼, 曾良怀, 等. 健康医疗大数据共享开放模式研究 [J]. 中国卫生信息管理杂志, 2019, 16(6): 649–654. Zhao F, Wu Q, Zeng L H, et al. Research on the open model of health care big data sharing [J]. Chinese Journal of Health Information Management, 2019, 16(6): 649–654.
Zhao F, Wu Q, Zeng L H, et al. Research on the open model of health care big data sharing [J]. Chinese Journal of Health Information Management, 2019, 16(6): 649–654. Chinese. 链接1

[ 8 ] 黄容. 基于属性加密的数据共享方案研究与设计 [D]. 西安: 西 安电子科技大学 (硕士学位论文), 2014. Huang R. Research and design of data sharing scheme based on attribute encryption [D]. Xi’an: Xidian University (Master’s thesis), 2014.
Huang R. Research and design of data sharing scheme based on attribute encryption [D]. Xi’an: Xidian University (Master’s thesis), 2014. Chinese. 链接1

[ 9 ] 黄娜娜. 医疗云中基于隐私保护的数据共享方案研究 [D]. 西 安: 西安电子科技大学 (硕士学位论文), 2015. Huang N N. Research on data sharing scheme based on privacy protection in medical cloud [D]. Xi’an: Xidian University (Master’s thesis), 2015.
Huang N N. Research on data sharing scheme based on privacy protection in medical cloud [D]. Xi’an: Xidian University (Master’s thesis), 2015. Chinese. 链接1

[10] 马诗诗. 区域卫生信息平台医疗信息隐私安全评估标准研究 [D].上海: 上海交通大学, 2019. Ma S S. Research on Evaluation Standards of Medical Information Privacy Security of Regional Health Information Platform [D]. Shanghai: Shanghai Jiao Tong University, 2019.
Ma S S. Research on Evaluation Standards of Medical Information Privacy Security of Regional Health Information Platform [D]. Shanghai: Shanghai Jiao Tong University, 2019. Chinese. 链接1

[11] 余文清, 邓勇. 移动医疗信息安全保护与法律监管机制建构探 讨 [J]. 中国医院, 2016, 20(9): 53–56. Yu W Q, Deng Y. Discussion on mobile medical information security protection and legal supervision mechanism construction [J]. China Hospital, 2016, 20(9): 53–56.
Yu W Q, Deng Y. Discussion on mobile medical information security protection and legal supervision mechanism construction [J]. China Hospital, 2016, 20(9): 53–56. Chinese. 链接1

[12] 复旦大学数字与移动治理实验室. 中国地方政府数据开放报告 [R]. 上海：复旦大学数字与移动治理实验室，2019. Digital and Mobile Governance Laboratory of Fudan University. China local government data opening report [R]. Shanghai: Digital and Mobile Governance Laboratory of Fudan University, 2019.
Digital and Mobile Governance Laboratory of Fudan University. China local government data opening report [R]. Shanghai: Digital and Mobile Governance Laboratory of Fudan University, 2019. Chinese.

[13] 李赞梅. 中、英、美、加、澳五国健康医疗领域政府开放数据的现 状与启示 [J]. 中华医学图书情报杂志, 2019, 28(6): 42–47. Li Z M. The current situation and enlightenment of government open data in health care in China, Britain, the United States, Canada and Australia [J]. Chinese Journal of Medical Library and Information Technology, 2019, 28(6): 42–47.
Li Z M. The current situation and enlightenment of government open data in health care in China, Britain, the United States, Canada and Australia [J]. Chinese Journal of Medical Library and Information Technology, 2019, 28(6): 42–47. Chinese. 链接1

[14] 金小桃. 健康医疗大数据 [M]. 北京: 人民卫生出版社, 2018. Jin X T. Health and medical big data [M]. Beijing: People’s Medical Publishing House, 2018.
Jin X T. Health and medical big data [M]. Beijing: People’s Medical Publishing House, 2018. Chinese.

[15] 刘润达, 董诚. 我国医药卫生领域科学数据资源共享现状分析 [J]. 中国基础科学, 2012, 14(5): 44–48. Liu R D, Dong C. Analysis of the status quo of scientific data resource sharing in the field of medicine and health in my country [J]. Chinese Basic Science, 2012, 14(5): 44–48.
Liu R D, Dong C. Analysis of the status quo of scientific data resource sharing in the field of medicine and health in my country [J]. Chinese Basic Science, 2012, 14(5): 44–48. Chinese. 链接1

[16] 安小米, 王丽丽, 许济沧. 欧盟数据经济战略分析与启示 [J]. 电 子政务, 2019 (12): 44–55. An X M, Wang L L, Xu J C. EU data economy strategy analysis and enlightenment [J]. E-Government, 2019 (12): 44–55.
An X M, Wang L L, Xu J C. EU data economy strategy analysis and enlightenment [J]. E-Government, 2019 (12): 44–55. Chinese. 链接1

[17] 马诗诗, 于广军, 陈敏, 等. 患者医疗健康数据开放与隐私保 护的问卷调查研究 [J]. 中国卫生信息管理杂志, 2019, 16(2): 226–231. Ma S S, Yu G G, Chen M, et al. A questionnaire survey on the opening of patient medical and health data and privacy protection [J]. Chinese Journal of Health Information Management, 2019, 16(2): 226–231.
Ma S S, Yu G G, Chen M, et al. A questionnaire survey on the opening of patient medical and health data and privacy protection [J]. Chinese Journal of Health Information Management, 2019, 16(2): 226–231. Chinese. 链接1

[18] Allen C, Jardins T R D, Heider A, et al. Data governance and data sharing agreements for community-wide health information exchange: Lessons from the beacon communities [J]. The Journal for Electronic Health Data and Methods, 2014, 2(1): 1057. 链接1

[19] 李赞梅, 钱庆, 李姣, 等. 健康医疗科学数据共享标准体系框架 构建 [J]. 医学信息学杂志, 2018, 39(11): 49–53. Li Z M, Qian Q, Li J, et al. Construction of a standard system framework for data sharing in health and medical science [J]. Journal of Medical Informatics, 2018, 39(11): 49–53.
Li Z M, Qian Q, Li J, et al. Construction of a standard system framework for data sharing in health and medical science [J]. Journal of Medical Informatics, 2018, 39(11): 49–53. Chinese. 链接1

[20] Shona K, Menno M, Christoph G. Responsible data sharing in international health research: A systematic review of principles and norms [J]. BMC Medical Ethics, 2019, 20(21): 1–13. 链接1

[21] Information Commissimer’s Office. Data sharing code of practice [R]. Wilmslow: Information Commissioner’s Office, 2019.

[22] Chatham House. A guide to sharing the data and benefits of public health surveillance [R]. London: Centre on Global Health Security, 2017.

[23] Department of the Prime Minister and Cabinet. Best practice guide to applying data sharing principles [R]. Canberra: Department of the Prime Minister and Cabinet, 2019.

[24] National Institutes of Health. NIH data sharing policy and implementation guidance [R]. Bethesda: National Institutes of Health, 2003.

[25] Scottish Government. Health & social care information sharing–A strategic framework 2014—2020 [R]. Scotland: Scottish Government, 2015.